Over the last few weeks, I have bumped into a couple of co-workers while I've been out shopping. Every single one of them made some type of comment relating to how I'm looking well/good etc. They all know that I'm off work on disability due to mental illness. Whether or not they're thinking it, I took their comments to mean, "You look good...why are you still off work?".
First off, I never go out in public looking raggedly scraggedly. My hair is done, my make-up is on and I'm dressed appropriately (no stretch pants, leggings or sweats for this girl). I like to look the best that I can. Just because I look put together physically doesn't mean that I'm put together mentally. I know that some of my co-workers/higher ups doubt the existence of mental illness and think it's all just laziness. Let me say here and now it is the furthest thing from laziness.
What those co-workers can't see are the days when I'm struggling just to make it through to bedtime without hurting my children. Not because they've been acting up, but because my fucked up brain thinks awful thoughts towards them. And when these thoughts come, it is rapidly followed by guilt, anxiety and shame. What sort of mother has thoughts of wanting to hurt her children on a regular basis? What kind of mother is afraid to hold scissors or knives when her children are within a 10 foot radius because all she can picture is slicing their vocal cords? Not a normal one, I can tell you that. Or a good one.
Besides images of hurting my children, I also deal fear of contamination...outside germs versus inside germs. So there's all that irrational bullshit filling my mind all day. Even when I'm within the safety of my house, there is still the ongoing battle of Joel's germs vs the rest of the house. And I constantly worry that I'm damaging Miss K's relationship with him because I'm terrified of her touching him and getting drool on her.
On top of that, I deal with the unpredictable mood swings. I don't know from one day to the next whether I'm going to be motivated and full of energy or whether I'm going to tell the world to go fuck itself and I hide in bed all day. And, again, there's all the guilt and anxiety that follows the depressive episodes because I worry about the strain it puts on Mike to have to look after all three kids.
What my co-workers don't know is that maybe the previous night I struggled with wanting to down every single pill in the house but instead I held my baby boy and cried and fought off the bad thoughts. Or maybe one night I actually did take all my pills and curled up on Miss K's bed as she slept and prayed that my world would end peacefully and that Mike would forgive me.
They know absolutely nothing about me or my issues. All they see is that I'm looking well and I'm out shopping so I must be capable of handling a full time job again. To that I say, "Fuck you and your naivety about mental illness".
Maybe I'm reading too much into their comments and my over-anxious brain is scrambling to stop myself from trying to explain how I'm able to be out in public. But then I think, "It's none of their damn business. I know I'm justified to be on disability and the 25 board members who voted on that think the same thing. Some days, I just wish I could stand on a soap box in the middle of the hallway at work and lecture these jackasses on what it's really like to live what I do. Mike has commented more than once, "How do you possibly have room in your mind to think anything else when it's crammed full of all these other worries and anxiety?". I honestly don't know how I accomplish what I do on the "good" days.
My nightly sedatives have kicked in full force and I feel as though I'm rambling. I really, really wish that I was able to blog more often, but it's been a struggle, these last couple of months. I hit a super low point at the end of December that resulted in my second hospital stay in a year and a half (you can fill in the blanks on that one) and I am struggling to come back from that...the guilt and the shame that inevitably follow something like that. I've been on so many fucking meds these last few months, I've lost count of how many pills I take in a day. You'd think I'm a senior citizen what with my timed meds that need to be taken at different points in the day. But, I've also come to realize that my brain needs help...both pharmaceutically and therapy-wise.
I wish the skeptics could read this. Maybe it would open their narrow minds just a little.
Rant over and out.
I for one, completely know where you are coming from, and I am one of your co workers who really misses you and your wit.
ReplyDeleteMental issues are something that people cannot see nor wish to understand unless you are going through it.
That said, I am cheering you on from the sidelines. I was following you on twitter, but it won't allow me anymore.....that's your choice.
Take care, I miss you and am always here to chat.
L
L...I don't know why you wouldn't be able to see my tweets? My first guess is that K monkeyed with something on my account. She has been known to send out tweets, text customers and send emails :) What is your twitter name? I'll try and figure out what happened. I'm wondering now how many others she may have deleted or blocked LOL. Oops!!
ReplyDeleteOne of the hardest things about having an illness is the lack of understanding from others. Not only will you deal with struggling with your illness,but you'll learn who your true friends are and will likely have to deal with the hurt from other people. People won't understand,and that is frustrating when your character/self image is under attack by something that is not within your control(the illness). That's a lot to deal with along with the illness itself! As a society we have failed to support eachother well enough through hard times. This is nevermore evident with our seniors. Most cultures wouldn't even dream of putting their aging parents in a home and are horrified at our practices here.
ReplyDeleteI have learned there are stages to accepting illness which may be helpful in just identifying them and the feelings that they make you feel: http://fibrofighter.tripod.com/17stages.htm
What these co workers are doing to you is discrimination. When someone says to you that you "look okay" they don't understand that you can't tell the strength you are putting forth. Can you measure strength? Can you measure pain? When you look at someone can you tell how much pain they're in? No, you can't and that's why people need to be subjective.
If you encounter this again, I would respond with "Well, today is a good day. Hopefully soon my good days will start to outnumber my bad ones."
Don't let the shallow thoughts, opinions, remarks, looks, whispers or assumptions of others impede your process of getting well. Don't feel guilty or shameful of having a good day and being out in public doing "normal" things. Afterall, that's what you are working towards. Celebrate your good days. Try and remember them on your bad days to give you some strength. And adopt the big 'ol eff you attitude to anyone who doesn't get it. They have no idea what it's like to be in your shoes, and that's more their problem than it should be yours.
(((hugs)))
I really needed that, Carmen...thank you. (((hugs))) right back at you.
ReplyDeleteI keep typing and deleting not feeling like I have the right words to say. But I want you to know that you and your crew are often on my heart and I pray that someday soon this struggle and the feelings of guilt and anxiety and shame will be so far from your reality that you will struggle to remember when they seemed to rule your world. xo n
ReplyDelete